TTP Registry

 

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The Thrombotic Thrombocytopenic Purpura (TTP) Registry was established in December 2008 at the Department of Epidemiology and Preventive Medicine. The purpose of this registry is to better define the incidence, natural history and clinical outcomes of TTP nationally. Establishment of a register will provide valuable observational data on the range of therapeutic strategies being employed in the treatment of TTP patients. This data will be of substantial value in the development of exploring factors influencing clinical outcomes with the goal to better define the optimal management of TTP patients. The registry will inform and inspire future hypotheses, and coordinate future national research.

Steering Committee

Lay Summary

Web Data Entry

Data Dictionary

Database User Manual

Enrolling your hospital

 

Contact Details

Miss Nikita Schembri
Research Assistant

Dr Louise Phillips
Research Manager

TTP Registry
Department of Epidemiology and Preventative Medicine
Monash University

Ph: +61 3 9903 0551
Fax: +61 3 9903 0576